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Patient's Prespective
Patient’s Perception of Quality Patient–Provider Communication
Salt E, et al. Orthop Nurse. 2012;31(3):169–176.
How important is communication with the health care provider to the patients with rheumatoid arthritis? In this study, the investigators included autorecorded interviews of 15 patients with rheumatoid arthritis to develop a model for patients’ perception of better patient–health care provider communication, and they highlighted 4 key aspects: honesty in patients explaining their symptoms, patients asking questions and giving opinions, health care providers’ questions and opinions, and dissemination of information by health care providers. The use of such models will help in conducting trials, especially quality-of-life studies.
Patient-Reported Outcomes in Rheumatoid Arthritis
Her M, et al. Curr Opin Rheumatol. 2012;24(3):327–334.
Patient perspective has become increasingly important in recent years both in clinical practice and in trials. The RA impact of disease score (RAID) and RA patients priorities for pharmacologic intervention (RAPP-PI) were two composite domains introduced in the OMERACT for use in patients with RA. These will be important domains to be used as part of patient-reported outcomes (PROs) in clinical trials on patients with RA, especially of biologic agent
Quality of Life in Patients with Systemic Lupus Erythematosus (SLE) Compared with Related Controls Within a Unique African American Population
Barnado A, et al. Lupus. 2012;21(5):563–569.
Patients with lupus do have compromised quality of lives. It is especially true for patients with an aggressive disease. The African American population has been known to have aggressive lupus. Through this study, the investigators have looked at the quality of life (SF-36) of these patients, and they found decreased physical component scores but not mental component scores when compared with controls. The investigators believed that this was due to the phenomenon of coping because of cultural influences.
Living with a Symptomatic Rotator Cuff Tear “Bad Days, Bad Nights”: A Qualitative Study
Minns Lowe CJ, et al. BMC Musculoskeletal Disord. 2014;15:228.
Rotator cuff tears are not an uncommon cause of pain and disability in shoulder joints. Little has been done to look at the quality of life of such patients. In this study, the investigators have looked at this aspect and interviewed 20 such patients and found that they had severe pain that disturbed their sleep in majority of cases and that it also affected their financial, social, and emotional abilities. Whether these symptoms improve with treatment is something that needs to be studied in the future.
The Science of Clinical Practice: Disease Diagnosis or Patient Prognosis? Evidence about "What is Likely to Happen" Should Shape Clinical Practice
Croft P, et al. BMC Med. 2015;13:20.
This is a very interesting article where the authors have highlighted the need for looking at prognostic biomarkers for treatment decision making rather than diagnosis. This is very relevant in rheumatology where there is usually a “window period” during which treatment decisions have to be made, failing which damage is done. This would be very useful from the patients’ perspective too, as prognosis has more value than just diagnosis.